We met with Oliver's Hematologist/Oncologist, Immunologist, Geneticist and several other Doctors yesterday. We decided that it is almost definite that Oliver has a form of HLH. There are 4 tests that can determine if he has HLH and if so, what type. Three of those tests have been sent to Cincinnati and the 4th one will be sent next week. We should see results in the next 1-4 weeks. The Geneticist also has a test out to see if Oliver has a 'deleted' companion gene that matches up with the positive Neimann Pick C gene we found in one of his tests. The thought is that just because Oliver doesn't have 2 of the gene's for Neimann Pick, he could have one and the other could be like a blank-allowing some of the Niemann Pick symptoms to present in his illness. Long story short, Oliver's liver function has improved and they are going to try the chemo again. Some of Oliver's test results have come back so high they are off the charts, so we can't really tell if the chemo lowered them...but for now everyone agrees that it's out best chance at beating this!
Sean is picking Jack and Jillian up today and they will be spending the next two weeks with us. We are so happy to be able to have the next couple weeks to spend as a family. There is an amazing photography business here that does free photo's for families in our situation. We scheduled an appointment and are looking forward to our first family pictures with Oliver :)
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