March 10 - Last day in Seattle Children's?

We are scheduled to be discharged tomorrow...bittersweet indeed! Sean and I have learned how to flush and care for Oliver's PICC line, how to check his feeding tube placement and how to give his meds. We will be coming to Seattle Children's several times a week for clinic visits to have labs drawn and to receive his chemo infusions. We are happy to get to have a somewhat 'normal' routine with Oliver in a home like setting, but we will miss our nurses here at Seattle Children's. A couple of our primary nurses have come to see Oliver in the cancer care unit. I hate to say it, but we absolutely have our favorites! Oliver had a couple nurses who went above and beyond while he was here...not just for Oliver but for Sean and I. Being on the floor has made us appreciate our NICU nurses even more. That's not to say the nurses on the floor aren't wonderful-they are-but Meg, Susan, Shaune and Sam you girls ROCK! I couldn't imagine going through the last few weeks without nurses like you! If you're reading this I hope you know exactly how much we appreciate the level of care you provided for our precious boy!!!

Oliver's platelets went down a little today (11,000) but all of his other labs look great. He is off the diuretics completely and we are lowering the steroid dose. He is eating almost entirely by nursing and his bili continues to decline. He is definitely aware of the power he has to demand being held, nursed or changed and he takes full advantage! :)

Overall he is getting better. We still don't know why. He still doesn't have a concrete diagnosis. But he is improving...and we couldn't be happier!