After talking to Oliver's Doctors today it is quite clear that we are all still confused about what it going on in that tiny body if his. It doesn't sound like the geneticist thinks it's Neimann Pick-but we are still exploring Oliver's gene's just in case. So...we are back to square one. We know Oliver's body is destroying platelets. It is not doing a good job of keeping a balanced white and red blood cell count. His liver and spleen are enlarged and bogged down...but we don't have a clue why.
We are having a meeting tomorrow at 3:30 with lots of Oliver's Doctors-hopefully we will come up with some new tests or disorders to explore.
Oliver had an EKG which showed that his heart is doing a wonderful job!
Meg is one of Oliver's favorite NICU nurses! We miss you Meg!!! Please come visit :)
This is Oliver's sick face...not feeling well yesterday :(
Sleeping like a baby today!
Hi, Heather. Rick and I have been reading your blog from Lake Oswego. It has been a long time since our paths have crossed, but we are thinking of you and your family. Rick and I are both sending a big hug to you. I now things are hectic right now, but when they settle down send me an email and we can catch up...I'd love to hear about your family. Zachary, Cameron, and Chelsea are 24, 25, and 26.
ReplyDeleteRobin Faltersack (Rick, Zachary, Cameron, and Chelsea too!