February 18 - The battle continues!

 

Our sweet baby has been so sleepy lateley but that hasn't stopped us from snuggling him! We've seen some changes in Mr. Oliver in the last couple of days. As I mentioned before he has quite a bit of blood in his stool. His medical team decided to stop feeds and let his tummy rest. When we start feeds again he will have less formula in my breast milk. Until then he gets nurtition through an IV. This morning he had a tiny, blood-free smear in his diaper. His bili level dropped a little more, but some of the other blood levels (like red blood cells) have started dropping-Oliver recieved a red blood cell transfusion this morning following his morning platelets. His belly is continuing to grow causing Oliver to work harder to breath. They have increased his oxygen level to 30% and his high flow to 6 liters.

He had another blood gas which looked good and his heart rate is stable and strong. From a cardio perspective he looks great. Because of the recent changes in Oliver's health his Doctors have agreed that starting him on a steriod would benefit him. More info on this to come-I will try to update again tonight. Right now Oliver is getting his new PICC line so I had a few minutes to update and wanted to fill you in. We will be meeting with the Hematologist, Oncologist and maybe even the Rhumatologist this evening to discuss any possible diagnosis they can collectively come up with. As of now I think almost every other department is out of ideas.

I had blood drawn today to check for Lupis. Oliver isn't presenting many signs that would suggest he has Lupis, but it's something that hasn't been ruled out.

We are crossing things off the list left and right! We appreciate your support and prayers and take comfort in knowing how many of you are cheering us on! We expect victory!