Mr. Oliver is just over 9 lbs. now! He has been more alert the last couple mornings and we've really enjoyed interacting with him. We have been blessed with fantastic nurses and the hospital tries to keep Oliver's nurses consistent, so they are really getting to know him-his likes and dislikes and can easily detect small changes in his behavior. He is in excellent hands!
I am beginning to second guess our decision to cloth diaper this boy...he seems to poop about every 15 minutes....something tells me we're going to be doing a lot of laundry ;)
Oliver's bili went down again today! His Doctors suspect his high bilirubin is from in utero hemolysis and bile sludging. My understanding is that this means there was an overload of blood cells and his spleen (and liver) were-and continue to be-overloaded with the task of breaking down and removing the extra cells. If this is the case, his bilirubin level should drop when his organs start to catch up and the problem should fix it's self.
We will be getting a new and improved PICC line-right now it's scheduled for Tuesday. Until then we are limiting the amount of blood draws...which means he will probably only have routine labs done until next week. Weekends drive me crazy! All the progress happens during the weekdays!!!
We got test results back today-not one positive result. I think HLH was a top contender but as far as I know HLH was crossed off the list today. We took him off the antibiotics, his platelets at 4:00 AM were 6,000, he received 2 platelet transfusions today and a blood transfusion (his blood count came back low this morning). Other than that everything is...exactly...the...same!
Sean and I are doing our best to be patient. We spend hours every day holding Oliver and smiling at his perfectness. He is quite the character and we love every minute of being his parents!
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