Mr. Oliver had a spontaneous decrease in his bilirubin count today-HOORAY! Hopefully this continues to happen. Last week his liver specialist said it's rare, but sometimes the liver just fixes it's self and they never really find out what was causing it's decreased function...I sure hope that's what's happening! Besides not processing the bilirubin his liver is still doing everything else it's supposed to do.
There have not been any changes to Oliver's medications. His breast milk is fortified with formula and they increased to to 28 calories per oz. His platelets were at 8,000 this morning so he received another transfusion. When he was at Sacred Heart he was given a dose of a medication called IVIG and following that dose his platelets went way up (and stayed up for a bit) so we are looking at his records to see if it's worth trying to repeat those results. The metabolic genetics team is considering doing a skin biopsy but with his risk of bleeding it's out of the question for now. If the IVIG works to keep his platelet levels high we might have a good window to do the skin biopsy.
The x-ray results from yesterday came back and since his organs don't look worse his Doctor didn't advocate for any change in respiratory support. Oliver also had a blood gas done this morning and it was beautiful! (A blood gas test measures the pH levels and the levels of oxygen and carbon dioxide in the blood. It's a good way to measure how well his lungs are moving oxygen into the blood and carbon dioxide out.)
Oliver had another blood draw for the Hematology team today, and it should be back by the end of the week. As of right now there are 9 tests pending and a line of people waiting to do more tests. My hope is that Oliver just starts getting better. I don't even need an explanation!
I'm sorry I haven't been able to post pictures lately...I'm not sure what happened to my laptop but I am unable to connect to the internet and the public computers I have access to won't allow pictures to be uploaded...Sean has some ideas so hopefully we will bombard you with photo's soon!!! :)
No comments:
Post a Comment