Feeding tube blues

Oliver is still on too much respiratory support to be allowed to return to cancer care, and his steroids have caused him to be grumpy! He is so opinionated about being held it's almost comical! I had to put him down to use the restroom and while he was alone he screamed and pulled his feeding tube out! Poor little guy had to wait hours for the tube to be placed and an x-Ray to confirm it was in the right spot...which means he was hungry by the time we could safely use the tube. Although placing feeding tubes is no fun for babies, he did seem to enjoy having it out for a bit :)