We met with some of Oliver's medical team today and have developed a new plan for Oliver's treatment. He is currently getting the etoposide (IV chemo) once a week and the dex (oral chemo) every two weeks. He is responding well (meaning blood & platelet counts are staying up longer and ferritin, IL-2 and NK cell function are retuning to normal) someday soon we will try doing the etoposide every two weeks with the dex...if his levels don't start getting out whack that would indicate that his HLH is infectious. If his HLH is genetic the lack of chemo would allow the surpressed HLH to gain strength and flare up...infectious HLH means no transplant-so that's what we're hoping for!!!
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