April 5 - The journey continues

I hope everyone has been able to keep up with the posts on GoFundMe, but I just felt like I should update on here...I found a great website that gives accurate info about HLH...here's the link

http://www.hlhjournal.com/2010/04/hlh-a-simple-description/

Oliver's test results aren't back from Cincinnati to confirm the HLH diagnosis, but his Doctors are confident that he has it. We are currently looking at Familial HLH. Recently, Oliver's Doctors have started further investigating other genetic disorders with the thought that Oliver may actually have two separate but similar diseases. We are still waiting for the second Neimann-Pick C test to see if he really just has one of the genes.

In the meantime, Oliver is back on oxygen and high flow. Breathing with all of his organs in the way is taking too much of his energy. He is still receiving chemo and steroids along with a beta blocker for his heart, a medicine to protect his stomach from the steroids and a medication to help his liver. He also takes vitamins. :)
The odds of a baby being born with the troubles Oliver is having are literally one in a million, but I believe Oliver is one in a million and I see no good reason we can't beat this! With amazing medical help, an abundance of love, and the power of prayer I just know Oliver will win this battle and live to do amazing things with his strength and courage. WATCH OUT WORLD!